Monday, 31 August 2015

Spring is near :) xo

Hey everyone.

I just thought I'd touch base on how I was going. I am heading towards another anniversary and still no signs of eczema. It's been a very busy year with my youngest who has asperger's starting school and I was excepted into Nursing. So with a huge transition for my son and beginning a new chapter for myself, I haven't had the time to touch base on my progress.

So Im happy to report, I have had no set backs what so ever. I still, however have the dreams and nightmares of waking up back when I was at my worst. I really don't think that will ever go away as it was the most difficult stage in my life and I really thought it would never end.

I visit my support group on Facebook now at almost 5000 sufferers, to remind myself how bad it was and now to try and help others going through the same ordeal. The most important information I can offer is to show them how I am now and that the suffering does end. Life does go back to normal and its better than before the steroid use.

I continue to stick to a wheat, dairy, egg free eating plan to the best of my ability. I know when I have my cravings I expect a uncomfortable few days ahead :)

On a Nursing studies note. One thing I will find difficult, will be agreeing with the use of steroid creams. I am hoping that I can be an advocate for not using them especially on young children. I will somehow use my experience and evidence to get the word out there. The Facebook Page has been a great start with many members getting their stories out there through magazines, newspapers, webpages and TV.

If you would like to visit the page, click on the below link.

You will find many friends and so much information to help you get through the withdrawal stage.

Hugs and love


PS Im on the left of the picture. A night out a few nights ago. Its great to get out again :) x

Thursday, 22 January 2015

We have lift off!!! Finally we are on TV!!

Yesterday we reached a milestone for our quest to make people aware of Steroid Induced Eczema. Two of our Aussie warriors Jake and Libby made it to an Australian TV show called A Current Affair to discuss their ordeal of going through the withdrawal to become well again. I could hear cheers every where, our support page was going in a frenzy as we all felt a huge lift off our shoulders. "This will be the beginning of our quest to get the word out there". Steroids are dangerous and the doctors behind the over prescribing them, will hang their heads shame once they admit what they have done is criminal. They have ruined lives, taken away precious time and scarred us for life emotionally and physically.

The only thing we weren't happy with was the Doctor who thought we all had mental issues and there was no such thing. Well I beg to differ. I was told to do what I did and it was the doctors who wanted me to keep going with the steroids, it was me who finally said no. If I didn't put my foot down when I did, I'm 100 percent I would be a very sick woman by now.

So heres the link. Another warrior kindly videoed it for us and uploaded to youtube. Thanks a million Samara!! xo

Have a great day and I will get back soon !!! Enjoy the TV show xoxox
Oh remember to head over to the support page at the below link :)

Sunday, 18 January 2015

2 Years and 3 months Steroid Free and I have healed up well :) x

It has been a while since I have written and I have been promising myself that I would every time I jump on to my Facebook support page. And speaking of that we now have 2700 members all searching for the answers for their problem skin. Answers that most people seem to find on there and it's so satisfying seeing so many people on there healing up but at the same time it's gut wrenching to see people going through this horrendous journey that I also went through. I feel hopeless and tearful when I see them posting their graphic pictures up and more so when I see children. The only thing I can do is offer suggestions and give them hope that TSW (Topical Steroid Withdrawal) is real and there is light at the end of the tunnel.

So for me now at my 2 year and 3 months mark, I am looking the best I have ever been in a very long long time . A female thing but I'm pretty annoyed that I have put a tad of weight but I am going to put that down to watching too many movies and studying for the last 6 months (and the naughty food opps). Now that its all finished for now, I have serviced my bike and the kiddies and I will be getting on the bikes as much as we can. I haven't been on my bike for nearly 5 years as I've lacked the energy and I can almost put that down to the use of steroids and adrenal fatigue.

Getting deeper into the topic of how my skin is really going, well its completely free of any eczema or suspicious rashes. My inner thigh that were giving me hell for so long have completely stopped itching and hiving. I would say my inner thighs were the last to heal up and this is completely weird as I never in my whole life ever had eczema on them. I still seem to get swelling and stiffness in the legs later in the afternoon. I am wondering because of my age, this may not heal up but not entirely sure. I do recall a report from Dr Rappaport that people in their later years may experience some scarring and some side effects of the withdrawal may never heal up. Fingers crossed it will go with exercise.

My life in general has been absolutely amazing in regards to not being obsessed with applying creams and taking pills. I had forgotten what it was like to be free of all of that. I am taking greater care with what I eat (most times) and what I put on my skin. Food wise, I lead a wheat, egg and diary free life style. I do know now 100% for sure if I'm naughty and dying for some dairy chocolate or a wheat biscuit, I get itchy my stomach blows up. This last for a few days then Im back to normal.

A few products I have discovered that work for, you may want to try if you're in the later healed stages of TSW are below.

My first one is Little Birds Organic Coconut Moisturising Butter. I use this on  my extra dry spots if I have them such as elbows, knees and feet but also after being in the sun I lather it all over and its completely yummy. You can buy it from here from the below address or its also available at Coles Supermarkets and its around $12 on special which is not bad at all.

Sunblock has been a number one priority for the summer and after reading more into the ingredients of all sunblocks and a few reports from universities, I hunted down a natural sunblock for the family. Anything you put on your skin is going to go into your blood stream just like the steroids. I found this amazing sunblock and its called Grahams Natural Sunclear 30 plus. All I can say, where has this been hiding all my life. It goes on like silk and has an amazing subtle smell. No stickiness and its does leave streaks or smudges. It's a little on the pricy side at $29 from Echolife but Im telling you it's worth every cent and you won't get sick from it. 

You can buy it off this website at or head to your local heath food shop to buy it. I could almost use this as a daily moisturiser it that good. 

In a nut shell, my life is normal as it can be with two beautiful children and preparing myself for my gorgeous little man to start school this year. I'II add a few pictures below to show you "me" now. Its funny but I haven't taken many, so I must get on to that again too.

Yes I look like a dag with my floppy hat lol not mine I borrowed it for the day but did the trick . Happy healing lovely people. Remember to go to the Facebook support page at
Send a request to join up, you will meet some amazingly strong people on there and make life time friends. I have met some gorgeous loving, caring people on there myself. Happy healing and stay strong, healing does happen. The proof is in the pudding :) xoxo